This Christmas, send Mirjam a card. Nothing could be simpler.
Fifteen-year-old German girl Mirjam Knapp is being held in hospital and subjected to an ‘activation regime’ against her family’s wishes.
On the recommendation of Dr Nigel Speight, UK-based ME charity, 25% Severe ME Group, has asked for supporters to help by sending Mirjam a card to wish her well and remind her that others are thinking of her.
Simon Lawrence published the impassioned plea on the charity’s Facebook page.
|Mirjam Knapp – cards wanted
Our medical adviser Dr Nigel Speight has been in touch to seek members’ support for Mirjam Knapp, a 15 year old German girl who is being kept in hospital and subjected to an ‘activation regime’. So far the result of this ‘activation regime’ has been continued deterioration, to the point that Mirjam is now completely bedridden and needs tube feeding. The ‘activation regime’ continues, and currently takes the form of being forced to sit upright for some time each day with the help of a rigid corset made specially. Which is all the that she can ‘do’.This regime is against her strongly expressed wishes. However the hospital authorities have declared that the girl lacks competence to refuse her “treatment”.
Because her mother has objected to the regime she has had her parental rights removed and her visitation rights are limited to 3 hours a day, and might be stopped at any time.
Dr Speight thought it would be good for Marjam to receive cards to let her know that others are thinking of her. We agree.
Nigel suggests people just say something like “We are SO sorry to hear how unwell you are, and we heartily wish you can soon get home to your mother”. You might want to let her know that you heard about her via an ME Charity to which you belong.
Managed entirely by volunteers, the 25% ME Group charity uniquely focuses on providing support services to those severely affected by ME (Myalgic Encephalomyelitis), and their carers, in the UK – one of the few groups to do so.
ME has been classified by the World Health Organisation (ICD 10 G 93.3) as a neurological illness affecting approximately 250,000 individuals within the UK. Of this number, approximately 25% of those affected will go on to develop severe ME.