Sometimes it’s a little easier to view information graphically, rather than as lines of type on a page. To mark International Awareness Day for Chronic Immunological and Neurological Diseases (May 12), Kit from A rainbow at night put together this wonderful infographic (see below) to highlight the essential elements of the ME/CFS/SEID definitions.
Kit hopes that “people diagnosed with CFS (or diagnosed with “ME” but using CFS criteria, which happens often in places like the UK) will read this and think twice about how they got their diagnosis, begin looking for the real cause of their symptoms with a doctor’s help.”
She adds: “…if they do unfortunately meet the criteria for M.E., they will learn what they’re really up against, how to manage this disease appropriately, and might even be able to find specialists to help with specific symptoms.
“Learning that you have the real M.E. also gives you the opportunity to slow disease progression with things like mitochondrial support, immunoglobulin replacement therapy, treatment for secondary infections, and energy management such as pacing and switching in contrast to forced exercise (repeated episodes of paralysis can cause additional permanent damage to the muscles; those unaware they have M.E. wouldn’t know this).”
Head on over to Kit’s site to download and share the graphic. As Kit says, “Like most diseases, people never hear of this one until it happens to them or someone they love, but facts about classic M.E. have effectively been buried beneath 30 years of misinformation. Many have lived with these diagnoses for years and never heard any of this before! It doesn’t have to be like this.”