
Patient advocate Gabby Klein appraises the current issues between the NIH and ME patients rather succinctly in her response to the government agency’s RFI.
Patient advocate Gabby Klein appraises the current issues between the NIH and ME patients rather succinctly in her response to the government agency’s RFI.
MEAdvocacy.org petition demands the NIH/CDC stop the CFS Study Using Reeves Definition and Cancel the Study’s Presentation at the Feb. 16th CDC Grand Rounds
Researchers and patient advocacy groups recently criticized the lack of government spending on ME and CFS. In a newsletter, IACFS/ME Co-Vice President Lily Chu notes that researchers faced unique challenges […]
The US National Institutes of Health (NIH) has announced several measures to boost research into ME/CFS, although full details of its proposal and funding allocations are yet to be released.
A comprehensive review of research into chronic fatigue syndrome has concluded that the illness is serious, with a total economic cost in the US estimated at $17 to $24 billion […]
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Protesters rallied outside the NIH campus in Bethesda MD, angry at the US govt’s neglect and mistreatment of one million disabled Americans with ME.