Patient advocate Gabby Klein appraises the current issues between the NIH and ME patients rather succinctly in her response to the government agency’s RFI.
NIH
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MEAdvocacy.org petition demands the NIH/CDC stop the CFS Study Using Reeves Definition and Cancel the Study’s Presentation at the Feb. 16th CDC Grand Rounds
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Researchers and patient advocacy groups recently criticized the lack of government spending on ME and CFS. In a newsletter, IACFS/ME Co-Vice President Lily Chu notes that researchers faced unique challenges […]
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The US National Institutes of Health (NIH) has announced several measures to boost research into ME/CFS, although full details of its proposal and funding allocations are yet to be released.
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A comprehensive review of research into chronic fatigue syndrome has concluded that the illness is serious, with a total economic cost in the US estimated at $17 to $24 billion […]
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ME patients stage Bethesda protests
Protesters rallied outside the NIH campus in Bethesda MD, angry at the US govt’s neglect and mistreatment of one million disabled Americans with ME.