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  2. Tag Archives: NIH

NIH

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  • Posted in:

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    • US (+Canada)

    A patient responds to NIH request for input

    by Gabby Klein 08/07/2016 1 Comment

    Patient advocate Gabby Klein appraises the current issues between the NIH and ME patients rather succinctly in her response to the government agency’s RFI.

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    MEAdvocacy calls for action on NIH CFS study

    by Colleen Steckel 10/02/2016 0 Comments

    MEAdvocacy.org petition demands the NIH/CDC stop the CFS Study Using Reeves Definition and Cancel the Study’s Presentation at the Feb. 16th CDC Grand Rounds

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    ME research org opens poll on NIH funding problems

    by Russell Logan 26/01/2016 0 Comments

    Researchers and patient advocacy groups recently criticized the lack of government spending on ME and CFS. In a newsletter, IACFS/ME Co-Vice President Lily Chu notes that researchers faced unique challenges […]

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    • US (+Canada)

    NIH: time for real scientists to study ME/CFS

    by Russell Logan 06/11/2015 5 Comments

    The US National Institutes of Health (NIH) has announced several measures to boost research into ME/CFS, although full details of its proposal and funding allocations are yet to be released.

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    IOM: ME/CFS costs economy $24b a year

    by Russell Logan 15/02/2015 3 Comments

    A comprehensive review of research into chronic fatigue syndrome has concluded that the illness is serious, with a total economic cost in the US estimated at $17 to $24 billion […]

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    ME patients stage Bethesda protests

    by Russell Logan 11/12/2014 12 Comments

    Protesters rallied outside the NIH campus in Bethesda MD, angry at the US govt’s neglect and mistreatment of one million disabled Americans with ME.

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Shoutout About ME

1 month ago

Shoutout About ME

Shoutout About ME shared a link. ...

[Neuroinflammation in the Brain of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]. - PubMed - NCBI

ncbi.nlm.nih.gov

Brain Nerve. 2018 Jan;70(1):19-25. doi: 10.11477/mf.1416200945. English Abstract

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Shoutout About ME

1 month ago

Shoutout About ME

Shoutout About ME shared their post. ...

Shoutout About ME

Refreshing to see a fair article about ME.

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Shoutout About ME

1 month ago

Shoutout About ME

Refreshing to see a fair article about ME. ...

Myalgic encephalomyelitis

asbmb.org

Unknown cause. No cure. New hope. A befuddling condition gets fresh funding, and more than a million Americans wait for answers.

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Shoutout About ME

3 months ago

Shoutout About ME

This patient toolkit for PEM avoidance is a real solid gain for us. We have finally got a solid comprehensive framework for helping to deal with one of the most pervasive symptoms of ME -- something that I feel can be conveyed easily to a doctor and family. In my mind this is more practical than the ICC definition etc.

In reality, it is the very antithesis of PACE and could form the basis of a state funded health programme.
...

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Shoutout About ME

6 months ago

Shoutout About ME

Dr Maureen Hanson‏'s talk at the RME patient meeting in Malmo, Sweden on 10/18 can be found here at 1:10:47. Hanson talks about the gut biome and metabolite studies using CPET to aid patient selection. It does seem that they are finally getting serious about patient selection. ...

Konferens i Malmö 2017 | Riksföreningen för ME-patienter

rme.nu

Utmattning ända in i cellen, Kardinalsymtom, biomarkörer och möjlig behandling - en konferens om ME/CFS Torsdagen den 19 oktober 2017 kl 13.00 - 17.00 Plats: Kockums fritid, Sal Bio, Västra Varvsgatan 8, Malmö. Hela konferensen går att se nedan: Del 1: Del 2: Klicka här för inbjudan och information…

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