Published on Jul 17, 2015
ME/CFS patients have difficulty describing their symptoms to others and are often met with disbelief after doing so, even from medical practitioners.
One of the cardinal symptoms of ME/CFS is post-exertional malaise or PEM.
In this video Dr Peter Rowe of the Johns Hopkins Children’s Center reviews the available published literature describing the various conditions that have been reported to induce post-exertional malaise.
Rowe uses graphics to illustrate the extensive evidence supporting patient reports and cut through the confusion surrounding PEM.
On a personal level, even though I’d read about these studies individually over the years, to see them brought together and linked in a single narrative was instructional. I was also surprised by the high quality and quantity of work in this area.
I believe the video would be a useful tool in explaining the illness to others, including medical practitioners.
Rowe’s work first described the relationship between chronic fatigue syndrome (CFS) and treatable orthostatic intolerance syndromes, and first reported the association between Ehlers-Danlos syndrome and CFS. He has directed the Chronic Fatigue Clinic at the Johns Hopkins Children’s Center since 1996, where he is the inaugural recipient of the Sunshine Natural Wellbeing Foundation Chair in Chronic Fatigue and Related Disorders.